What is the Florida Pancreas Collaborative and What is our Purpose?

  • The Florida Pancreas Collaborative (FPC) is a partnership between researchers, doctors, patients and families from institutions throughout Florida (please see map). We are dedicated to finding better ways to diagnose and treat pancreatic cancer and improve quality of life for Floridians of all races and ethnicities.

  • The FPC aims to develop the first statewide ‘biobank’ for pancreatic cancer. A biobank is a valuable resource for collecting and storing data, biological specimens, and medical images.

  • Importantly, our hope is that the biobank will help make advances in the diagnosis and treatment of pancreatic cancer, leading to improved survival, quality of life, and personalized care.

 

WHO CAN PARTICIPATE? 

  • Males or females 18 years of age or older.

  • Individuals who self-identify as African American/Black, Non-Hispanic White, or Hispanic/Latino.

  • Individuals with a new suspected or confirmed diagnosis of pancreatic cancer and receiving care at a participating study site.

 

 

 

PROVIDE INFORMED CONSENT

WHAT IS INVOLVED IF I PARTICIPATE?

  • Your participation will not require extra visits to clinic. Any specimens and images you donate will be collected at the time of routinely scheduled procedures involved in your care.

  • The surveys can be completed at a location of your choice using a computer, tablet or mobile device. Paper versions of surveys are also available upon request.

 

WHAT ARE THE BENEFITS OF PARTICIPATION?

  • The information and biospecimens you provide may help to understand the factors that contribute to the unequal pancreatic cancer burden among certain racial and ethnic groups.

  • Your participation may also help in the development and discovery of new drugs and treatments for pancreatic cancer.

 

WHAT ARE THE COSTS OF PARTICIPATION?

  • There are no added costs to you or your insurance company for this research. You or your insurance company will be responsible for all the usual exams and medicines used for diagnosis and/or treatment.

  • Your participation is entirely voluntary. If you decide not to participate you will not jeopardize present or future medical care or treatment.

  • You may stop participation at any time.

 

WILL I RECEIVE ANY COMPENSATION?

  • As a token of appreciation for your time and effort, a gift card will be sent to you upon completion of study tasks.

 

WILL I KNOW THE RESULTS OF THIS IMPORTANT RESEARCH?

  • If we learn important information that may affect your care as a result of this study, we may contact you or a person whom you designate to discuss optional clinical tests or studies.

  • We also plan to update you on new developments through a study newsletter. 

 

WHAT ABOUT MY PRIVACY?

  • Data collected from this study will only be used for research purposes. Results may be published in a scientific journal, but your identity will not be published.